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Tag: rare diseases

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Fight not yet over as case against Vertex is dropped after cystic fibrosis medicine price cut

Posted in: Access to Medicines, Healthcare system, Latest

Last year a South African woman took a multibillion-dollar United States pharmaceutical company to court with the aim of securing access to life-changing cystic fibrosis medicines. That case has now been dropped following a reduction in the price charged for the medicines in South Africa. Catherine Tomlinson reports.

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Fight not yet over as case against Vertex is dropped after cystic fibrosis medicine price cut

Rheumatology in SA: Patients pay the price for shortage of specialists

Posted in: Access to Medicines, Healthcare system, Healthcare Workers, Latest

South Africa’s shortage of rheumatologists often results in patients struggling to access the treatment and care they need, especially for public sector patients and people living in rural areas. Elna Schütz asks several local experts about the state of rheumatology in the country.

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Rheumatology in SA: Patients pay the price for shortage of specialists

Interview: Cheri Nel, the investment banker from Joburg taking on pharma over cystic fibrosis medicines

Posted in: Access to Medicines, Healthcare system, Latest

Johannesburg-based investment banker Cheri Nel is the driving force behind a court case that may result in dramatically expanded access to life-changing new cystic fibrosis (CF) medicines. Biénne Huisman asked Nel about the motivation behind the court case and what it is like to live with CF.

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Interview: Cheri Nel, the investment banker from Joburg taking on pharma over cystic fibrosis medicines

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