In-depth: What is behind the massive cataract surgery backlogs in Gauteng?
Gauteng’s confirmed backlog for cataract operations has crept up to just under 14 000 people, although some ophthalmologists believe the number is at least triple this – given COVID-19 disruptions. The provincial Department of Health, however, remains silent on any catch-up plans it may have.
The Democratic Alliance’s Member of the Gauteng Legislature Jack Bloom says the MEC for Gauteng Health Dr Nomathemba Mokgethi’s response to his questions in the legislature revealed that the worst backlogs are at Chris Hani Baragwanath Hospital, then Thelle Mogoerane Hospital, Sebokeng Hospital, and George Mukhari Hospital.
“The waiting times are also very variable; the longest being two years at Mamelodi Hospital, 22 months at Sebokeng Hospital, and 18 months at the Chris Hani and George Mukhari hospitals,” says Bloom. “Hospitals need support for overtime payment and skilled personnel and equipment to radically speed up the restoration of sight to thousands of people.”
Cataracts are small cloudy patches that develop on the lens in the eye and that can result in significantly impaired vision. Cataract surgery typically involves removing the cloudy lens and replacing it with an artificial one. The operation takes around 30 to 45 minutes and results in much-improved eyesight.
While COVID-19 restrictions and pressures have hampered the provision of cataract surgery, deeper and more long-standing problems in the public healthcare system may also be to blame. As far back as 2011, an article in the South African Medical Journal warned of various staffing issues and the risk of long waiting lists for the sight-improving operation.
Ophthalmologist Dr Nicky Welsh is the head of the clinical unit at the Charlotte Maxeke Academic Hospital (CMAH) and the University of Witwatersrand. She describes a “slow creep” of collapse and dysfunction at this key facility that is still not back to full function after a fire that broke out there was allowed to spread with devastating consequences in the middle of April. She suggests that the situation at CMAH is emblematic of a wider malaise impacting healthcare in the province that is also impacting ophthalmology services.
Welsh sets out how problems have been allowed to fester at a hospital like CMAH for many years, long before the pandemic. “Two theatres should be running full-time, five days a week. As a quaternary facility, we should be focused on doing the more complicated surgeries rather than cataracts, but we have patients coming from as far away as Heidelberg because there’s a dire lack of eye hospitals and clinics. So there’s a problem with how surgeries are being allocated to facilities and it adds to unexpected pressure for staff,” she says.
Capacity to do surgeries to match demand is, however, just one major burden. Welsh points out other problems like staffing issues that include poor productivity and low morale. There are also clerical bungles, mismanagement of hospital funds, and maladministration, and inaccurate data capturing to ensure patients can be easily located and contacted.
Welsh, who has worked at the hospital for 28 years, says, “You can count on one hand the times that there hasn’t been something that goes wrong on an operation day.”
It’s a shortage of nurses, porters, and cleaners. This means surgeries that should begin at 8 am seldom do, she says. Patients are not prepped for surgery on time, patient files can’t be located, or theatres aren’t cleaned on schedule.
Welsh says the hospital was not spared from COVID-19 deaths either. A significant number of their nurses and support staff died from the virus, especially in the first wave. Added to this, she says many nurses have stress-related illnesses and chronic illnesses, meaning they take more sick days or complain of feeling poorly when they are on shift. They are also an ageing cohort of nurses and new staff members have not been added to their ranks because vacancies remain unfilled.
Lack of surgeons
The number of ophthalmologists in the public health sector is also shrinking. Welsh estimates there are around 350 surgeons in public and private sector combined, but says this number is likely an over-estimate as many surgeons have emigrated – their presence in the country limited to keeping up their professional registration fees.
Welsh says junior doctors are eager to do the operations to meet their training and qualification requirements, but the pressures associated with trying to do a job drowning in the swells of public healthcare sector failings is disheartening. It’s also a blow to retaining them in public healthcare, or even in the country.
“It can be unsettling for them. You just try to keep going but in the end, you give up because it’s like banging your head against a wall,” she says.
Along with strained human capacity, there are regular shortages of consumables like theatre gowns or theatre drapes. Repairs and maintenance of equipment have fallen behind schedule and suppliers and service providers are reluctant to do work with government because they are not paid or are repeatedly not paid on time. On the other end, there are suppliers who inflate quotes, adding to the maladministration, misspending, and corruption that has been rife in the province.
Tracking down patients to schedule surgeries can also be hit and miss. Many who have been on waiting lists for a long time have changed their telephone numbers. It means time is lost when staff members have to make multiple phone calls to track down a single patient.
“The sad reality is that because there are such long waiting times, many of the patients have died by the time they get to the top of the list,” she says.
“We also find that many patients arrive for their surgeries, but they don’t have their hypertension or diabetes under control. Many couldn’t access their treatments easily during lockdown restrictions. We understand this, but it means we have to cancel those surgeries on the day,” Welsh says.
Ultimately, Welsh says the multiple problems are “an erosion over many years and it is patients who bear the brunt.”
Waiting for over two years
For someone like JD (full identity withheld), waiting endlessly for surgery while her sight deteriorated was too much anxiety to bear. The Edenvale resident says she ended up at three hospitals and clinics over a period of over two years and was then told to wait some more. Eventually, she had to “beg, borrow, or steal the money” to have the procedure done in the private sector this September.
She tells Spotlight how her eyesight first started to worry her in January 2019. She got a referral letter from an optometrist for cataract removal and ended up at CMAH.
“I was there one day by 7 am and waited in the queue. The nurses and the queue marshals were very rude to everybody. They really couldn’t care less for patients and that was the worst experience out of all of this. Eventually, I saw a doctor at around lunchtime and he told me they could operate in November.”
At her November appointment date, all she got was eye drops and was told to come back the following year.
By the first quarter of 2020, COVID-19 hit South African shores and all non-emergency and elective operations were stopped – dashing JD’s hopes. “When we got to lockdown level 2 this year, I started phoning, and then I was told to try at St John’s Clinic because of the fire that had happened at Charlotte Maxeke Hospital. So I was there one morning at 5 am and they told me I would wait a year and that I would be better off trying at Chris Hani Baragwanath. When I got there it was the same story,” she says.
By then she says the quality of her vision was “deteriorating week by week. Having cataracts is like looking through a dirty window. Everything is blurry and you also can’t see colours so you have to watch where you walk and I couldn’t read anymore.”
JD eventually borrowed money from friends and family to raise the R45 000 needed for a double cataract procedure in private practice.
“I’m lucky to have had the help of family because my husband and I are pensioners and I didn’t have the money. I don’t understand how it can be that you have to wait for two years for a surgery that is so important,” she says.
Cataract surgery blitzes
Dr Shabbir Hussain couldn’t agree more that cataract surgery should be a public health priority because of how much it can change a patient’s quality of life, at any age.
Hussain, who is head of ophthalmology at Leratong Hospital in Randfontein on the West Rand, has since 2005 been heading up a community-supported initiative to do weekend cataract surgery blitzes held once a month.
Through the support of the Muslim community and the Islamic Medical Association, the hospital has also been able to raise funds for the artificial lenses that are implanted to replace the cloudy lenses that are removed, theatre consumables, eye care packs, microscopes, and to pay doctor and nurses and other support staff to work over weekends.
“These weekend surgeries are at least something that we can do to clear the backlogs and we are ready to help other hospitals to start their weekend projects,” he says. “My gut feeling is that in Gauteng there can be up to 60 000 people who are suffering from cataract blindness because it was only in level 2 that we have been able to start booking patients and for more than a year now we have just been sending people home.”
Hussain’s first lockdown level 2 cataract project weekend surgery took place at the end of September. The team at Leratong Hospital managed to operate on 35 patients, but he expects the next surgery blitz in October will reach around 60 patients.
“We use three theatres that are empty over the weekends and we have help from surgeons and nurses who come from other hospitals. We pay something so that staff members have motivation to work over a weekend. To date, the weekend cataract project has helped 7 299 people,” he says.
Among those 7 299 people was a group who gathered at a small hall at the Leratong Hospital at the end of September. It was for a quick check-up. They also watched a video and received a sponsored post-operation eye care pack. Patients were also invited to speak about their experiences. That their sight was restored almost instantly had patients filled with emotion and gratitude telling how they have been able to resume hobbies like needlework; to see their grandchildren’s faces clearly and to hold onto their jobs.
Temple Ntuli (68) was one of these patients. She says, “I couldn’t go to the shops because I couldn’t see anything on the shelves and I had to ask my grandchildren to help me. Now I can see the people on the streets; I can see what colours they are wearing even from far and I can read my Bible again.”
Also at the check-up gathering was Sydney Mothosi (72). Taking off his dark glasses, he shows how the healing has already started two days after his surgery. He says he is still surprised by the almost instant restoration of his sight. “I could drive here myself to the hospital for my check-up. I can see the TV clearly now – before I was taking the chair right to the front of the screen.”
It was clearly poignant for 55-year-old Alwyn Taljaard to have his eyesight restored. He chokes up remembering how by this past winter he knew if he didn’t get his cataract surgery he would have to tell his bosses that he would not be able to do his job properly anymore.
“I am a nightshift manager and I have to look at labels with small writing and I couldn’t see the labels anymore even when I walked right up to the labels. I am so happy that I can see and that I have been able to keep my job. It’s wonderful; I can even see my wife again.”
Questions were sent to the Gauteng Department of Health’s communications department for comment and input on the province’s strategy to bring the cataract surgery schedule back on track. Spokesperson Kwara Kekana requested and was granted, a lengthy extension to respond but did not provide comment by the time of publication.